The Possibility Of Recovery In Children Suffering From Epidermolysis Bullusa?

Illustration of The Possibility Of Recovery In Children Suffering From Epidermolysis Bullusa?
Illustration: The Possibility Of Recovery In Children Suffering From Epidermolysis Bullusa? irefuseeb.org

ask the doctor? Is this about to recover or not? thanks

1 Answer:

Greetings HealthReplies.com, Thank you for asking at HealthReplies.com. There is a medical condition that occurs in the patient you have written with a diagnosis of Epydermolysis bullusa (EB) showing the presence of lysis or flaking of the epidermis or the outer skin layer and a bull or blister formation or a picture of skin blisters such as in patients with sunburn. Skin damage or skin disorders in patients with EB can include damage to the epidermis, dermis and basal layer. Patients with EB can occur at the age of the newborn or occur after adulthood. The cause of EB is genetic fit and genetic disorders that are passed down. This can occur if one or both parents have a genetic disorder or have a genetic mutation inherited from their children. Spontaneous genetic mutations can also occur during the formation of cells or old sperm cells, thus triggering the risk of EB. In addition, other causes are immune system disorders or an autoimmune disease, in which the patient's body forms antibodies that attack his own body, causing skin damage and bulls on the skin. Patients with EB can be divided into 3 types based on damage to the skin layer with prognosis and possible risks, namely: 1. Epidermolysis bullosa simplex, is a frequent case of EB with symptoms of blisters on the epidermal skin layer. In this period, the possibility of recovery and healing can go well and recover, but scar tissue complications can occur 2. Dystrophic epidermolysis bullosa, EB with blisters above the dermis layer and under the basement membrane. In this type of EB, the hope of recovery is also good, however, requiring a long period of treatment, scarring appears. Other risks can also arise such as skin cancer and kidney damage 3. Junctional epidermolysis bullosa, with symptoms of skin blisters can occur in the junctional area of ​​the skin. With a prognosis or the possibility of recovery or improvement is low. About 50% of cases die before the age of 1 year. Therefore, to determine the recovery or improvement of pediatric patients with EB it is necessary to know the depth of skin damage and the presence or absence of complications that occur. So I can not be sure how it is possible to recover in the case you submit. In addition to me not doing examinations and treating patients directly, I also did not know the type of EB they were experiencing. In addition, this case or EB stroke in this case can be triggered by ignorance or genetic mutations from his parents, whether mother, father or both. If you need better direct information, you can ask directly with a dermatologist, because this case is a rare case, and requires direct treatment and treatment by a pediatrician. Continuous care and treatment by doctors and prevention of EB complications are important long-term references. Prevention of infection, nutritional adequacy, wound recovery, prevention of blisters or blisters, prevention of movement and function, and psychological support for families and patients are important steps that continue to be pursued in the long term care and supervision. Coordination and evaluation of various fields of medical science can also be pursued, both from surgical specialist doctors, skin specialists, clinical nutrition specialists, or perhaps dentists and pediatricians. Thus the info we can convey. thanks.

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