Tips For Caring For Children With Genetic Disorders?
Good night how to care for children with genetic disorders like what ya and whatever healthy eating can be given
Hello. Thank you for the question submitted to HealthReplies.com. We can understand the concern you feel.
Diseases due to genetic disorders in children pose its own challenges for parents in caring for children. Relatively expensive medical costs and the need for special nutritional intake (for example special formula milk), making diagnosis is not easy due to symptoms that may resemble other diseases, and stigma from the community are things that are a challenge for parents in caring for children with disease disorders genetic.
In general, the following are tips that can be given to treat children with genetic disorders:
See the right doctor; it is recommended that the child be consulted by a pediatrician, if necessary to a pediatrician with the relevant subspecialty (example: subspecialty nutrition and metabolic diseases, or endocrinology)
Encourage family members to provide support in child care
Active in the community of fellow patients or parents of patients with similar diseases, for example: MPS Foundation and Indonesia Rare Disease
Manage stress well and focus on child health efforts without regard to community stigma
Pray and surrender to God
Nutrition planning needs to be adjusted to the general health condition of the child, his age and the disease he suffers. This eating arrangement should be consulted directly with the pediatrician who treats the patient so that it can be tailored to the individual needs of the patient.
To enrich insight, you can read articles about congenital abnormalities in children. Thus information from us. Hopefully always healthy. May be useful.